Who We Are

An NGO that works to share Love, Hope, Care and Awareness about Sickle Cell Disease to reduce stigma and Discrimination and create opportunities for people living with Sickle Cell Disease.

Registered in 2019 and approved by NGO bureau by January 2020 to carry out its activites. We have managed to reach out to more than 2286 persons concerned and living with Sickle Cell disease, 350 regstered sickle cell warriors coming from various parts of Uganda like Soroti, Buvuuma, Mbale, Busunju etc.

Our Vision

To eradicate and create a sickle cell free generation.




Our Mission

To improve the livelihood, esteem and opportunities for the sickled generation.

20

Starting Patients

1315

Current Patients

185

Outreachs

5

Years of Experience

Core Values

  • Kidness and Equaity
  • Family and Love
  • Tolerance and Hope
  • Peace building and Care
  • Capacity building
  • Awareness

Aims

  • To improve lives of persons affected with sickle cell anemia
  • To protect, preserve and defend the rights of persons with sickle anemia
  • To share love, hope, care and awareness on sickle cells through its charitable activities

Our Team

Biography & Experiences

Sarafinah Bukirwa

CEO / Founder

SARAFINAH is a sickle cell warrior, a mother and a sister to the sickle cell generation. Because of her kindness, love and passion for sickle cell, the pubic calls her mother of nations. She’s a medical clinical officer by profession, has a certificate in medical laboratory technology. She’s an adviser at Nyondo group of companies and the vice chairperson at the Ugandan red cross society (mukono branch).In 2020 she was elected as the sub committee chair at the African sickle cell alliance(ASA) a united African federation joining more than 26 countries to unite Africa against sickle cell disease.

Hajat Sarah Nakato

Partner

The CEO Nyondo Group of Companies and mother to Sarafinah started her journey towards sickle cell after losing her second born son to this illness. She later realized that her last born daughter had the same illness which was regarded as witchcraft in the family and community hence loosing her marriage in the process and with all the challenges she went through to raise her daughter, she decided to educate the mass about sickle cell disease and most especially care giving on how to deal with sickle cell patients.

Mariam Zaynab

Partner

Mariam zaynab is registered adult nurse working in the city of London. I studied at city university London. I love travelling and out door activities. My passion with sickle cell disease has been growing over years. My career as a health professional I have encountered many people who are affected by this illness. Which is less spoken about. My mission is to promote awareness and improve lives.

Isaac kabunga

Partner

I started my journey in information technology at 17 years of age currently holding a degree in computer and electrical engineering technology dealing with front and backend web development. The experience we went through in our family with the sickle Cell disease influenced me to get involved in the fight against Sickle Cell. I enjoy watching sports and playing soccer in my free time.

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